Bad news and good news:
Bad news first....
Booty rash is still flaring its ugly face.... she is miserable. Had to call Cincinnati today to get some different medicine as it is getting so bad that she can hardly function. She does not want to sit or walk and cries about how bad it hurts all day. Every diaper change is a fight. We have resorted to a bath after every dirty diaper....she has had about 20 baths in 48 hours! Today she started to scream when the water would hit the sores.... I am not sure what else to do.
The nurse in Cincinnati said that because her colon is moving faster now as there is less “road to travel” the body does not get rid of enough of a bio-salt ( I am not sure that is the correct name...some sort of salt though.) The salt reeks havoc on the booty..... and the cycle begins.
So in a nut shell the bad news is that Madison HAS a real pain in her butt!
Good news....
Because Madison is so miserable I am trying to “catch” as many poops on the potty as possible to avoid having it in her diaper. I have had her sit on the pot 3 different times for about 5 minutes today. Each time she pooped!!! I am still not sure that she is feeling it. But as long I can get her to sit and she can relax we are having luck, at least for today! We will consider this a step in the right direction. We all needed a little encouragement.
Last night was hard. I have not seen Jed cry since they wheeled Maddie away for surgery, until last night. Madison had a breakdown about how its all not fair...Jed was telling me that she had said that she is the only one in her family that gets sick, the only one in her family that wears diapers and then he began to get choked up as he said that she said... 5 years old are not supposed to wear diapers dad. So there we sat in the dark on the deck crying..... I guess those times will come on occasion. We are thankful for the small victories today. Thank you Lord for giving us a glimpse of hope in a time that it was desperately needed.