trying to get a little rest
trying to keep her distracted with some games.
Maddie and Glenn beat Jed!
an attempt at the playroom....can you see the enthusiasm!!
hello.... as I type my eyes are heavy! 2-3 hours of sleep just does not cut it! Madison is finally sleeping - it is 5PM here. The first time that she has closed her eyes since her very short night last night. We have been having some awful issues with pain control since surgery. at about 2AM last night they added Valium to the list of narcotics on top of the morphine pump. seemed to take some of the edge off when trying to work with her. She again stopped talking for quite sometime yesterday...it must be her new way of coping. After the pain was under control and we had just fallen asleep at 3AM we started having issues with her breathing. Because of the meds her breathing is shallow and makes all of the alarms sound. She was moved and rolled and messed with for about an hour...still no luck so she had to do some breathing exercises....nothing like being totally annoyed, drugged out and tired and then asked to exercise!!!
Finally at 5AM I saw her eyes close as she drifted off. The Dr. started rounds at about 6AM and she never really got good sleep again until now. This morning she was miserable. Had to have the pain team come and see her...changed all of her meds moved her catheter (which seemed to be a major factor in the pain level) and she is seeming allot more comfortable.
You can hear her stomach growl across the room. the nurses chuckle because when they listen to her chest they can not hear it clear because of all the stomach noise. She has not asked for food or drink since last night which also indicated to me the level of pain she had. the "liquid meat and potatoes" should be here in the next hour and they hope that by tomorrow the feeling of hunger should be gone.
We tried to take a small walk to the activity center today..lasted about 5 minutes. You can tell from the pics that she is out of it~ we will try again tomorrow.
Dr. Levitt brought the pictures.... I was expecting to see pictures of the colon in a sterile tub -Oh no.... he gave us 8x10 pics of the surgery in PROGRESS with the colon on the table - still attached. Jed looked a little queezie. Nothing that I will share with others or scrapbook but definitely interesting for the huge medical file drawer at home. Maybe someday she will want to see them.....not for years - by then the memories may not be so fresh. ( all you nurses that are reading this and praying that I will let you see them - the answer is .....YES but only you guys...!)
Danielle and Ted are on there way here with Olivia!!! YEAH. I am excited to see her. The will stay until Sat or Sun depending on how Maddie feels. It will be nice to have some other support her and allow me and Jed to actually go have a meal together! We have been alternating since we do not want food or drinks in here. Madison is excited to show Olivia all the cool things around here.
I have a few other REALLY COOL things to blog about....stay tuned. Hint: Mads may be a celebrity!
Love you all!
Nikki
11 comments:
So glad to get this e-mail from you Nikki. I have been thinking of you and wondered when the surgery was - of course I didn't remember! Sounds like the Lord has been taking care of you. I cannot imagine what you all have been going through - love and faith will do wonderful things! Maddie is so blessed to have you as parents. I will continue to pray for you all. Keep your faith - fear and faith do not walk together. Keep those blogs coming. We all need our extended families!
Sue DeJonge
So glad the surgery is behind you! Praying for rest for all of you and healing for Maddie. Glad that Danielle and Ted will bring Olivia to be with you for a few days. It will be good to have family (there's nothing like a sister's support)there with you and for the 4 of you to be together for a while too. We are here for you! Barb Padfield
Oh my word! What a journey! We are glad the surgery went well. The worst is over! We read your updates everyday and we continue praying. Love you guys!
we are praying for you Maddie, you sweet thing! We pray the whole family gets the rest and peace of mind that you all need. all our love, Jack and Heather
We are thinking of and praying for you all. I'm sure the future is frightening but may the knowledge that you have family and friends who love you give you strength in the days that lie ahead.
Love,
Jeff, Shirley, Emily, and Eric
Sweet Maddie Grace....i thought of her last night as i saw a preview for the new Madagascar movie thats coming out...tell her when she gets out we will all have to get aunt danielle and livi and all go see it together! Tell her im so proud of her and cant believe how strong she is! What a big girl... im praying for you guys and that the Lord will continue to give you the strength you need for the upcoming days... Mads has been blessed with amazing parents..
Love you guys,
Alli
Can't believe all the details! So much going on.....and you still have time to let us all know (bless your heart). I hope you ALL get some much needed rest soon. We are thinking and praying for you HOURLY!!!!! Love you all!!! Kisses Maddie!!!!
The Whitbords
Hey Maddie,
We hope that you were able to get a good rest last night. You are constantly in our thoughts and prayers. God has given you the best doctor in the world and some great nurses to take care of you. And of course your mom and dad who have not left your side. We are taking good care of Libby. Can't wait to see you.
Love you
Papa and Gramma Smith
Jed, Nikki, and Sweet Maddie Grace,
Trisha has been keeping us posted and we have been praying for all of you. I finally got on the blog sight. God is so good to have put in the right place for care.
Maddie, it's okay not to say anything - even when you don't feel like talking, Jesus is with you and hearing even your thoughts, He's a great friend and listener.
We continue to pray for healing and renewed strength for all of you.
Enjoy your visit with Olivia!
In His Love and Grace,
Delvin and Mae
Thanks for doing such a good job keeping us all posted on what is going on! Maddie we are praying that you stay comfortable and get some good rest and that your sweet tummy feels satisfied even without food. We are so thankful that you guys are in such a great hospital but we are also praying that the staff makes the best decisions for Maddie. Hope today goes well! Hugs and kisses to you all!
Thank you Nikki for keeping up with the blog. It really helps me know in what way I can pray for you all. What a story miss Maddie will have when everyone says "what did you do this summer?"
Miss you guys and will keep praying!
Wendy Gale
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