It is a good day when sisters are together!

Heading to the playroom

playing doctor

Maddie is doing well. She is a trooper for sure. We are still having major issues with her catheter...it is causing excruciating pain. They believe that it is causing bladder spasms...super painful as the bladder sits right by where the incisions are internally. sounds miserable.

We had to wake her up twice last night to change her diapers and clean her wounds.....it is all I can do to not break down. She just screams. It seems to bother her catheter tube more than even her surgical sight. They have agreed to remove the catheter today instead of tomorrow as that should eliminate allot of the pain issues.

Maddie got up and walked yesterday. We have been having a good time wit Olivia here. We took the girls to the pay room at 2 after a morning of Maddie being pretty uncomfortable. We wheeled her there in the wheelchair and she played for sometime in the wheelchair. It was about 15 minutes before she got frustrated and wanted out to roam free with Olivia. She did good. Pretty unstable on her feet at first but ended up staying on her feet for more than an hour.

We got back to the room and she was exhausted...still did not go to sleep until later last night. We did some crafts in bed until about 10 and then I demanded that we both get sleep so we sang and I rubbed her back...it took a good 20 minutes but she did fall off to sleep.

Toady's assignment from the DR... "lots of farts"! Maddie was so giggle when he said that! I am trying to figure out if there is a way that I can tape her belly sounds to post on here. The two of us got to laughing pretty hard last night as WE were sung to sleep by her stomach....it is so impressive. I will see what I can figure out!

The gang (ted,danielle,jed and O ) will be here soon! Hopefully with a good ol cup of Starbucks...secretly disguised for a desperate mother!! How is it that coffee just makes the day better?!

Thanks for your continued prayers!